While on Facebook yesterday afternoon, I learned that this is Multiple Sclerosis Awareness Month. I'm not sure if I knew this before or not, but now it's written on my calendar so I will have no trouble remembering MS month ever again. And honestly with as many people who unfortunately have MS, everyone needs to be more informed.
I've been thinking lately how much my life has changed due to my having MS. When I was in high school, my dream was to be an English teacher and hopefully inspire young people to love writing. My favorite time of the year was when my English teacher would announce we would be doing some creative writing. I'm sure my face lit up every time while most of the class broke into groans of disapproval. Writing gave me a chance to express myself in a way that I felt I wasn't allowed to do on most other occasions and I loved it.
For those who do not know me from a young age, as strange as it may sound, I used to be shy. And I mean PAINFULLY shy. If I could have been invisible while in high school, it would have made my life easier. I was overweight, had terribly curly hair (the beauty industry had not yet understood that "white" people have natural curls and need products all their own!), was already large breasted, hated my name (Lucy is my nickname) and all this led to a deep insecurity in most aspects of who I was.. except in writing. Writing is when I would come alive.
When I was diagnosed with MS, my life had already been falling apart since I was barely able to walk, couldn't see too well and didn't know who I was or what the future would bring. While others, at the age of 21, enjoy "partying" or other young person activities, I was having numerous MRI's, spinal taps, all kinds of doctor's appointments and learning what life would be like if I had to live it out in a wheelchair. Needless to say, becoming a teacher was put on the back burner and is no longer a possibility for me with the cognitive issues I have from the MS. But yes, I'm OK with this. Shit happens and life does go on.
A couple years after my diagnosis, Duran Duran, one of my favorite all-time groups, released a song called "Ordinary World." This song became my lifeline as the words spoke to me in a way I hadn't thought until the moment I really listened to Simon LeBon's words of wisdom. Here are the parts that made my life that much easier.. and Simon, thank you!